Comments on: Endometriosis Pain: How Several Women Describe It

By: Kaze joy

Kaze joy — Wed, 28 Jun 2023 19:40:48 +0000

Hi Katie
Thank you for sharing your experience,I have been with this pain for more than 5 years I didn’t know that alot of women are going through the same thing.i always think that nobody feels the kind of pain I go through am 33y old but I don’t even know what to o do right now.am in Nigeria.

By: Diane Smith

Diane Smith — Mon, 08 Nov 2021 03:06:56 +0000

In reply to Mimi. I am 68 years old. I had uterus removed because of this horrible disease when I was in my thirties. I was in so much pain I thought about driving off the side of the road on my way home from work. I would start my period in the middle of the night and would wake up and almost had to crawl to bathroom to get in a hot tub of water and cry. The worst thing of all my husband did not understand the pain. He actually was so mad at me that he would not help me with anything. He fixed me nothing to eat no coffee nothing. I could not stay in bed. I went to the kitchen to fix me coffee and my stitches broke and I bled on the floor. Had to go to doctor and he gave me shoots for 2 days. I cried then too. I could go on and on but, I think having the hysterectomy was the best thing I ever done. Free of the pain now.

By: Katie

Katie — Sat, 01 May 2021 03:54:34 +0000

In reply to Kim.

I am so sorry Kim. My heart goes out to you – it’s such a terrible disease that takes so much from us 🙁

By: Kim

Kim — Sun, 18 Apr 2021 16:10:36 +0000

I was diagnosed years ago but was told by my dr that I suffered from endro early on most likely when I got my first period,,,I have four beautiful children however I also lost four pregnancies 😢….I would also be bedridden due to the pain that felt like someone was stabbing me repeatedly and every time to date that I urinate or go #2 my insides feel as though they are going to fall out! I recently had an ultrasound that showed my ovaries are covered in cysts , I have kidney stones and a growth in my uterus, which now I need a biopsy done…Endrometriosis is a progressive disease that seems to have no cure in site,,sure you can have all your insides removed but that just opens up for more problems with other parts of the body (from what others have posted on other sites ) so really we are suffering until when?! I’m so beyond stressed most days and to top it off I my husband is sick himself, I get scared for our children, what if I can’t raise them and I know my husband can’t due to his condition, I’m the source of our income and support for my family…I may have vented, the struggle is so real for all women who suffer endo..

By: Shae

Shae — Fri, 16 Apr 2021 08:51:23 +0000

In reply to Katie. He saved me too!! Omg is he a life savor!the second I read “Colorado” and “doctor who finally believed me” I just knew it had to be him!!

By: Katie

Katie — Sun, 06 Dec 2020 05:06:32 +0000

In reply to KirstenNB. Yes! On my abdomen :)

By: KirstenNB

KirstenNB — Sat, 05 Dec 2020 21:53:16 +0000

TENS unit where? On your abdomen?
I’m almost excited to try this!!!
Okay, I’m not excited for my next bout of pain, but when it does come, I’m interested in trying the TENS…

By: Isy Dickinson

Isy Dickinson — Mon, 16 Nov 2020 21:47:15 +0000

Hi ladies…reading this makes me so emotional…it brings flash back to when i was i so much in pain and distress….all of thos symptomes..i had them for years..destroying my life….i had 2 ops and still full of it…attached everywhere to the point where i can’t have anymore operations without putting different organs at high risks…1 gyneco told me:”the best thing i can wish for you is an early menopause”…i am 45. I take birth comtrol in continue and i was so lucky and blessed to have a son 12 years ago…lost my second one at early stage of pregnancy…
I am ‘well’ since a while…but went through depression and weight gain….worried about how i am going to know when i will be in menopause as i am so terrified to stop my pill……so scared of the pains…those pains….
Keep going….x

By: Fern

Fern — Tue, 26 May 2020 15:35:27 +0000

I was lucky enough to be taken seriously by a female GP when I told her I thought I had ovarian cysts. A diagnosis of severe endometriosis causing ovarian cysts came reasonably fast. I’m awaiting surgery and taking birth control in the meantime. The birth control pills have definitely reduced symptoms while I’m waiting for surgery

By: Katie

Katie — Mon, 27 Apr 2020 19:34:46 +0000

In reply to Mandi. Ugh, this is the worst, and I HATE that it's so hard to get doctors to take your issues seriously. I think a lot of them just see so many people in pain that they think everyone is making it up. Which is terrible. I think taking detailed notes about your pain and when it happens can help. But also just asking around to find a doctor who does take Endo seriously. Nancy's Nook has some great suggestions!